A First Step - Understanding Guillain-Barr Syndrome provides a fresh perspective on a devastating illness, and is a frightening story of a rarely talked about disease from the point of view of one in good health who was suddenly stricken with almost total paralysis. The book is comprised of two distinct parts: Part I, 'What Really Happened', a more or less blow-by-blow account of the effect Guillain-Barr Syndrome had on the author and close family, from its surprise onset, through treatment and subsequent rehabilitation; Part II, 'In Dreams', a vivid description of dreams and hallucinations experienced during seven months of Intensive Care.
My brother was stricken recently with GBS and this book was a great way for me to understand what he was going through. It also helped the family identify was some of the expectations might be for his recovery. The dream sequence at the end was really interesting because my brother said he had very similar dreams.
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